I just came home from getting a pacemaker. 4days ago I experienced another episode of extreme weakness, barely able to speak. I have been having these for around a year. They have been more frequent and lasting longer.
This episode lasted 3 days. I have been to many drs and had many tests, mostly normal. No diagnosis. I went to ER. My heart rate was 44,45 for the over 1 hr I had tests done. Dr said “ something is definitely wrong ,I am admitting you.
Many tests,all normal. My Cardiologist said your symptoms are happening when your heart rate is low, so iam putting in a pacemaker tomorrow.
That night I somehow remembered several weeks ago I started feeling an “episode” coming on and I had pressed on my abdomen and burp hard 3 times. I stopped feeling bad! I started investigating on line and there it was Roemheld Syndrome.
After a lot of reading I called my wife she read it and couldn’t believe it.
Long story short the pacemaker will help if needed but I have things I can do to avoid it. 1. Limit carbonated beverages 2. Dont eat so fast and talk while eating 3 smaller meals 4 sitting in recliner after meals. And mainly pressing on abdomen creating burping. I use a CPAP machine put can’t avoid that.
After reading other’s symptoms I know some are different but who knows about where vagus nerve is pressured and what different ways it affects the heart.
I hope that some clinical trials will help RS become more recognized in medical community.
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