Datenschutzerklärung

Datenschutzerklärung

Last updated: [6 June 2026]

Roemheld-Syndrom International respects your privacy. This Privacy Policy explains what personal information we collect, how we use it, and what rights you have.

This website provides general educational information about Roemheld Syndrome, gastrocardiac symptoms, heart palpitations, digestive issues, and related research. It does nicht provide personal medical advice, diagnosis, or treatment.

1. Who we are

This website is operated by Roemheld Syndrome International

Website: Roemheld-Syndrom International
Website address: https://roemheld.org
Contact email: info@roemheld.org
Country: NL

For privacy-related questions, you can contact us at the email address above.

2. What personal data we collect

Depending on how you use this website, we may collect the following information:

Information you provide voluntarily

This may include:

  • your name;
  • your email address;
  • messages submitted through contact forms;
  • newsletter sign-up information;
  • comments or forum posts, if these features are enabled;
  • personal health-related information that you choose to include in a message or story.

Please do not send sensitive medical information unless it is necessary for your message and you are comfortable doing so.

Technical information

When you visit the website, some technical data may be collected automatically, such as:

  • IP address;
  • browser type;
  • device type;
  • operating system;
  • pages visited;
  • date and time of visit;
  • referring website;
  • approximate location based on IP address.

This information is mainly used for security, website performance, analytics, and spam prevention.

3. Health-related information

Roemheld Syndrome International may discuss medical topics, symptoms, patient experiences, and research. If you contact us or submit a story, you may choose to share health-related information.

Health-related information can be considered sensitive personal data under privacy laws such as the GDPR. We will only use this information for the purpose for which you provided it, such as responding to your message, reviewing a patient story, or managing website content.

We do not sell health-related information.

4. How we use your information

We may use personal information to:

  • respond to your messages;
  • operate and maintain the website;
  • send newsletters, if you subscribe;
  • manage comments, contact forms, and spam protection;
  • improve website content and user experience;
  • analyze website traffic;
  • protect the website from misuse, spam, hacking, or security threats;
  • comply with legal obligations.

Under the GDPR, websites must explain what personal data they collect, why they process it, how long it is stored, and what rights users have.  

5. Legal basis for processing

If you are located in the European Economic Area, United Kingdom, or another region with similar privacy laws, we rely on one or more of the following legal bases:

  • Consent — for example, when you subscribe to a newsletter or accept optional cookies.
  • Legitimate interests — for example, website security, basic analytics, spam prevention, and improving the website.
  • Legal obligation — when we are required to retain or disclose information by law.
  • Your request — when you contact us and we need to process your information to respond.

Consent must be freely given, informed, specific, and unambiguous where it is used as the legal basis for processing.  

6. Cookies and analytics

This website may use cookies or similar technologies.

Cookies may be used for:

  • essential website functions;
  • security;
  • remembering preferences;
  • analytics;
  • embedded content, such as videos or social media content.

If we use non-essential cookies, such as analytics or marketing cookies, we will request consent where required by law.

Examples of tools that may be used include:

  • Google Analytics;
  • Google Search Console;
  • WordPress security plugins;
  • spam protection tools;
  • newsletter tools;
  • embedded video or social media services.

Update this section once your actual tools are installed.

7. Contact forms

If you contact us through a form, we collect the information you submit, such as your name, email address, subject, and message.

We use this information only to respond to your inquiry and maintain appropriate records.

8. Newsletter

If you subscribe to our newsletter, we collect your email address and possibly your name.

You can unsubscribe at any time by clicking the unsubscribe link in the email or by contacting us directly.

We will not sell or rent your email address.

9. Comments and forum features

If comments or a forum are enabled, information you submit may be visible to other visitors.

This may include:

  • username;
  • comment or post content;
  • profile information you choose to add;
  • date and time of posting.

Do not post private medical information, personal identification details, or information about others without permission.

We may moderate, edit, or remove comments or forum posts that are inappropriate, misleading, promotional, abusive, or unsafe.

10. Patient stories

If you submit a patient story, we will only publish it with your permission.

Before publication, we may edit stories for clarity, privacy, length, or safety. We recommend using a first name, initials, or a pseudonym instead of your full name.

You can request removal of your published story by contacting us. We will make reasonable efforts to remove it, although cached or archived versions may remain outside our control.

11. Embedded content from other websites

Articles on this website may include embedded content, such as videos, images, research links, social media posts, or external articles.

Embedded content from other websites behaves as if you visited that external website directly. These websites may collect data about you, use cookies, track your interaction, or monitor your activity if you have an account with that service.

We are not responsible for the privacy practices of external websites.

12. Sharing your information

We do not sell your personal data.

We may share limited information with trusted service providers who help us operate the website, such as:

  • web hosting providers;
  • email/newsletter providers;
  • analytics providers;
  • spam protection providers;
  • security providers;
  • technical support providers.

These providers may only process information as necessary to provide their services.

13. International transfers

Because this is an international website, some service providers may process data outside your country.

Where required, we aim to use appropriate safeguards for international data transfers, such as contracts, adequacy decisions, or standard contractual clauses. The European Commission explains that EU data protection rules include safeguards for transfers to countries outside the EU.  

14. How long we keep your information

We keep personal information only as long as necessary for the purposes described in this Privacy Policy.

Typical retention periods:

  • contact form messages: as long as required by law.;
  • newsletter data: until you unsubscribe;
  • comments/forum posts: until removed by you or by us;
  • patient stories: until you request removal or we decide to remove them;
  • technical/security logs: up to [insert period, e.g. 6–12 months];
  • legal or administrative records: as long as required by law.

15. Your rights

Depending on your location, you may have rights regarding your personal data, including the right to:

  • access your personal data;
  • correct inaccurate data;
  • request deletion;
  • restrict processing;
  • object to processing;
  • withdraw consent;
  • request data portability;
  • complain to a data protection authority.

The ICO explains that privacy notices should inform people about their rights, including access, rectification, erasure, restriction, objection, and withdrawal of consent where applicable.  

To exercise your rights, contact us at:

info@roemheld.org

We may need to verify your identity before responding.

16. Security

We take reasonable technical and organizational measures to protect personal information.

However, no website, email system, or online service is completely secure. Please avoid sending highly sensitive personal or medical information through ordinary contact forms or email.

17. Children’s privacy

This website is intended for a general audience and is not directed at children.

We do not knowingly collect personal data from children. If you believe a child has provided personal information, please contact us so we can delete it where appropriate.

18. Medical disclaimer

The information on this website is for educational purposes only.

It is not a substitute for professional medical advice, diagnosis, or treatment. Always consult a qualified healthcare professional about symptoms, medication, diagnosis, treatment, or medical decisions.

If you experience chest pain, severe shortness of breath, fainting, symptoms of a heart attack, or any urgent medical concern, seek emergency medical help immediately.

19. Changes to this Privacy Policy

We may update this Privacy Policy from time to time.

When we make changes, we will update the “Last updated” date at the top of this page.

20. Contact

For questions about this Privacy Policy or your personal data, contact:

Roemheld-Syndrom International
Email: info@roemheld.org
Website: https://roemheld.org